Show Notes
Misbehaving feeding tubes, changing bodies and moving cities to breathe. In this episode of Tubie Talks: Hooked Up, Steph sits down with disability advocate Amelia Tang to talk ME/CFS, mast cell disease, Cushing syndrome, body image, dating within the disability community and what social isolation really does to a natural extrovert. Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feed...
More from Tubie Talks
Haley Stewart was a teenager, tube-fed and living in a tiny town in Montana when her grandma convinced her to post a video. It changed everything. In the final episode of Tubie Talks: Hooked Up, Steph chats with Haley about growing up while her body fell apart, finding a community online that finally understood her, and the grief of losing a close friend. Haley also shares the hope and faith that's carried her through it all – and what she wants anyone struggling right now to know. Tubie Talk...
Lily-Rose "Rosie" Burnell has been septic 17 times and in ICU six times – and she's not afraid to talk about what that's done to her mental health. In this episode of Tubie Talks: Hooked Up, Steph sits down with her dear friend Rosie, recording just days after she came home from a month-long hospital admission. They talk about complex PTSD, the trauma of repeated ICU stays, and the very real cost of being seriously unwell while everyone around you keeps living their life. Rosie also shares th...
Freya Steindl has been on TPN since she was a baby – and it hasn't stopped her running half marathons, rock climbing or road-tripping across the US-Canada border for the Eras Tour. In this episode of Tubie Talks: Hooked Up, Steph chats with the 24-year-old paediatric nurse from Brisbane about growing up not wanting to be "the sick kid", working alongside colleagues who just get it, and what it's really like to not eat orally at all. Tubie Talks: Hooked Up is a Heart Out Media podcast proudly ...
Missed prom, met her people online, and came off every tube she had. In this episode of Tubie Talks: Hooked Up, Steph sits down with 21-year-old Lilly Downs to talk life after a COVID diagnosis turned everything upside down. They cover feeding tubes in high school, finding friendship through illness, dating with medical baggage, and waking up one morning to a video with a million views. Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low...
Besties, feeding tubes, hospital drama and a bit of rule-breaking. In the first episode of Tubie Talks: Hooked Up, Steph sits down with her friend Coady Gillis to talk friendship, chronic illness, self-advocacy and the people who show up when things get hard. Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices. CONTENT NOTE: This episode includes open discussion of ...