Living Well with Multiple Sclerosis

MS symptoms and diagnosis: from clinically isolated syndrome to multiple sclerosis | S8E14

Living Well with Multiple Sclerosis

Show Notes

What happens when you experience MS symptoms, but don’t yet have a diagnosis? In this episode of Living Well with MS, we hear from Maureen Haith, who first experienced neurological symptoms in 2002 but wasn’t diagnosed with multiple sclerosis until 2019. Along the way, she was told she had clinically isolated syndrome (CIS) – a term many people are unfamiliar with, but which can be an early stage of MS. Maureen shares her experience of recognising early symptoms, navigating uncertainty, and deciding when and how to tell others about her condition. She also reflects on how discovering the Overcoming MS programme influenced her lifestyle, from diet and exercise to building community through local support groups. This is a thoughtful and reassuring conversation for anyone facing MS diagnosis uncertainty, exploring practical ways to take control and make sustainable lifestyle changes over time. Watch this episode on YouTube. Keep reading for the topics, timestamps, and our guest’s bio.

02:02 First MS symptoms: fatigue, tingling and early warning signs03:49 New symptoms appear: changes in walking and sensation04:55 What is clinically isolated syndrome (CIS) and why it matters07:38 Deciding when and how to share an MS diagnosis11:37 MS risk and family: understanding genetics and environment14:23 Discovering Overcoming MS and making lifestyle changes16:35 Finding support: building connection through local MS circles20:19 Following the MS diet while travelling and eating out26:03 Managing weight on a whole food plant-based diet29:29 Coping with brain fog: practical tools that help31:33 Advice for newly diagnosed: start small and build gradually

Read all of the Overcoming MS books Find plant-based restaurants on the Happy Cow website Check out the Chef Cards for eating in a restaurant New to Overcoming MS? Learn why lifestyle matters in MS - begin your journey at our 'Get started' page Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website

Follow us on social media:

Facebook Instagram YouTube Pinterest

Don’t miss out:

Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS here. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS.

Support us: If you enjoy this podcast and want to help us continue creating future podcasts, please leave a donation here. Feel free to share your comments and suggestions for future guests and episode topics by emailing [email protected]. If you like Living Well with MS, please leave a 5-star review.

More from Living Well with Multiple Sclerosis

Oct 21, 2026

In this episode of Living Well with MS -- where we explore topics relating to living a full and healthy life with multiple sclerosis -- we are pleased to welcome Vickie Hadge as our guest! Vickie is an Overcoming MS facilitator who has lived with MS for 20 years. She talks with podcast producer Gina Beach about MS symptom management for physical and cognitive symptoms. Watch this episode on YouTube. Keep reading for the topics, timestamps, and our guest’s bio. 02:04 Introduction to MS and why we get symptoms 05:59 Fatigue Management 15:25 Mobility and Balance 19:01 Sensory Symptoms 21:33 Vision Changes 23:23 Bladder and Bowel Symptoms 25:45 Cognitive Issues 27:13 Mood and Emotional Wellbeing 30:35 Q&A

Oct 14, 2026

In this episode of Living Well with MS -- where we explore topics relating to living a full and healthy life with multiple sclerosis -- we are pleased to welcome Jose Segurado as our guest! Jose is an integrative health and life coach and who lives with MS and follows the Overcoming MS program. Watch this episode on YouTube. Keep reading for the topics, timestamps, and our guest’s bio. 02:44 The Turning Point: From Diagnosis to Action 05:04 Finding Hope and Information 07:33 Overcoming MS: A Framework for Change 10:07 The Importance of Diet and Lifestyle Changes 12:10 Listening to Yourself: The Key to True Health 14:35 Building a Sustainable Lifestyle 16:10 Understanding Multiple Sclerosis 16:51 Understanding Stress and Emotional Well-being 19:52 The Gut-Brain Connection 22:17 Taking Responsibility for Your Well-being 24:54 Redefining Identity and Purpose

Oct 7, 2026

Mari L. McCarthy is an award-winning and international bestselling author whose books Journaling Power: How to Create the Happy, Healthy Life You Want to Live and Heal Yourself with Journaling Power have introduced people around the world to the power journaling has to help heal the body. After losing feeling and function in the right side of her body in 1998, Mari was diagnosed with MS. Undaunted, she took up a daily journaling practice which over time helped improve her MS symptoms to the extent that she is now an accomplished recording artist with three full-length albums. Mari’s website, CreateWriteNow.com, is the platform she runs to share her methods, expertise and passion for journaling. Originally broadcast in 2020, this episode has been edited to remove out-of-date content and reuploaded in 2026 to ensure it remains relevant and useful.

Sep 30, 2026

In this episode of Living Well with MS -- where we explore topics relating to living a full and healthy life with multiple sclerosis -- we are pleased to welcome Brett Drummond and Karen Campbell. Brett is from MSTranslate and hosts the European Committee for Treatment and Research In Multiple Sclerosis (ECTRIMS) patient day and podcast. Karen is a nurse and MS researcher who lives with MS and attended the conference this year. Watch this episode on YouTube. Keep reading for the topics, timestamps, and our guest’s bio. 00:00 Introduction to ECTRIMS 2025 and Speakers 02:02 Overview of ECTRIMS Conference Highlights 02:41 Brett's Insights on MS Research 09:07 Emerging Treatments and Therapies for MS 15:10 The Role of Viruses in MS 18:28 Lifestyle Modifications and Rehabilitation in MS 20:03 Biomarkers and Their Importance in MS 24:24 Engaging the MS Community in Research 28:24 Karen's Perspective as a Patient and Researcher 33:55 Q&A Session: Addressing Community Questions

Sep 23, 2026

In this episode of Living Well with MS -- where we explore topics relating to living a full and healthy life with multiple sclerosis -- we are pleased to welcome Véronique Gauthier-Simmons as our guest! Véronique is a yoga and breathwork teacher who lives with MS and the author of Taming the Walrus: Inner Intelligence, Yoga, and the Science of Healthy Ageing. Watch this episode on YouTube. Keep reading for the topics, timestamps, and our guest’s bio. 02:05 Journey with MS: Reluctance, Learning, and Transformation 05:25 The Unexpected Love for Yoga 07:16 Taming the Walrus: Insights from the Book 15:25 The Importance of Interoception 19:55 Movement for Healthy Aging: Strength, Stretching, and Speed 26:08 Breathwork: A Tool for Wellbeing 32:09 The Necessity of Deep Rest 34:42 Longevity: Quality of Life Over Quantity 37:38 Healing: Wholeness and Inner Alignment 39:54 Final Thoughts for Those Recently Diagnosed with MS

See all episodes →