Show Up, Stay Present, Keep Finding Ways to Connect: Four Essential Tips / Alzheimer’s and Other Dementias
The Caregiver's JourneyShow Notes
“When I look back on my caregiving experience, I found a purpose and a true sense of self that I didn’t know I had. Yes, there was a lot of drama and a lot of trauma, but I look back and think - this was a great experience and something I feel good about doing for the people I love.” - Nancy Treaster
There’s a moment in dementia caregiving where you realize your relationship has fundamentally changed. Your loved one may no longer recognize your name, your face, or the decades you’ve shared together. How do you keep loving someone through that? How do you stay present when the person in front of you is both familiar and a stranger?
We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve navigated these moments personally - and we’re sharing what we’ve learned about showing up, staying present, and working to keep finding ways to connect with your loved one as their memory fades. Nancy’s chapter, “Love Beyond Memory,” is featured in the Caregivers Advocate, Volume 3.
Let’s explore four tips for loving beyond memory - even when the person you love doesn’t remember who you are.
Connect with us and share your tips:
Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: [email protected], [email protected]
Full Show Notes
Additional Resources Mentioned
Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney The Caregiver’s Advocate Volume 3: https://amzn.to/4vS5Cy8 The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.
Takeaways
We shared 4 tips:
Don't flip the switch Let go of who they were, and fall in love with who they are now Redefine what connection means Give yourself permission to get help — before you are drowning
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When someone gets a diagnosis of dementia, there are two people who need to be cared for: the person living with dementia and you, the primary caregiver.” Nancy Treaster
Do you leave your loved one’s doctor’s appointments feeling intimidated or confused instead of empowered? Do you wish you had a clearer role in shaping their care? Many caregivers feel this way, and there is a better way to approach these visits.
Did your loved one recently receive a diagnosis of dementia? Have you already worked through the first six steps of the Navigating Dementia Caregiving Roadmap? If so, you’ve built a solid foundation, and it’s time to keep going.
“There’s no perfect option out there, and there’s no community that’s going to check every single box.” — Kelly Graffius
"Two words have been the foundation of every decision I made across all of my caregiving roles — safe and happy. Before every choice, I would ask, does this help my loved one be safe? And does this support them being happy?" — Sue Ryan