Show Notes
In this special bonus episode, Beth shares a very personal update about her family’s experience with genetic testing for FTD. After finally receiving a long-awaited appointment with a geneticist, Beth reflects on the difficult questions this raises - whether to test or not, the emotional toll of waiting and what it means to live with the uncertainty of a possible genetic link to dementia.
With raw honesty, she talks through the pros and cons of knowing, the impact on mental health and the challenges of navigating a healthcare system that often feels painfully slow. This episode aims to offers a window into the complex decisions many families face when dementia may run in the family.
If you need support with anything discussed in this podcast, visit alzheimers.org.uk for the dementia support line. To learn more about dementia research and how you can get involved, email [email protected]
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More from FTD - Navigating The Cr*p
This week I’m joined by Sam, whose son Andre was diagnosed with FTD at just 22. Sadly, he passed away at 24.
Last week we heard from Suzi, who is living with FTD. This week her husband, Colin, joins me to share the other side of their story.
This week I'm joined by Suzi Barton - the FTD Warrior. Suzi was diagnosed with FTD at just 50 and has been living with it for 11 years. She's a former social worker, a mum, a nana to 11, a rock chick and a miniature maker, and she's proof that a dementia diagnosis doesn't mean life has to stop.
Series 3 kicks off in FTD Awareness Week 2026 with Emily Harris. Her mum, Andrea, was a nurse for 35 years. She was first diagnosed with young onset Alzheimer's at 56, until a genetic test showed she actually has MAPT FTD.
In this special bonus episode of FTD: Navigating the Crap, Beth is joined by Natalie Carter, host of the Dementia Dialogues podcast.