
Episode 140: RAISING PPA assessment and treatment from the ground up: In conversation with Dr. Jeanne Gallée
Aphasia Access ConversationsShow Notes
Episode: 140 RAISING PPA assessment and treatment from the Ground Up: In Conversation with Jeanne Gallée
In this episode you will discover: · Assessment and Intervention Aren't Separate — Conversation itself can double as both. By listening closely and responding to what a client offers, in a "more art than science" way, clinicians gather meaningful data and provide support at the same time, rather than treating these as two distinct phases of care. · Rigid Testing Can Erase the Person Behind the Diagnosis — Traditional standardized assessments often serve the goals of an institution or research protocol more than the person being assessed. Frameworks like RAISE and the PACT scale shift the focus toward strengths, natural conversation, and what someone can still do, rather than repeatedly measuring decline. · PPA Needs Its Own Identity and Training Path — Because primary progressive aphasia sits uneasily between post-stroke aphasia care and traditional dementia care, clinicians often receive little formal training in it. A global survey found major gaps in education and confidence, underscoring the need for dedicated resources, like Dr. Gallée's PPA roadmap, built specifically for this population. Do you ever wish you could step back in time and undo the missteps and errors of the past? What if you had the opportunity to build something from the ground up? Certainly, knowing what you know now, you could begin in a better place. But of course, there's always pitfalls with new beginnings, even with the knowledge of lessons from the past. You could, however, make a positive impact on that new beginning. Welcome to the Aphasia Access Conversations podcast. I'm Jerry Hoepner, a professor from the University of Wisconsin Eau Claire, and co-facilitator of the Chippewa Valley Aphasia Camp, Blue Gold Brain Injury Group, Mayo Brain Injury Group, Young Persons Brain Injury Group, Brain In-Cog, and Thursday Night Poets. I'm also a member of the Aphasia Access Podcast Working Group. Aphasia Access strives to provide members with information, inspiration, and ideas about their aphasia care through a variety of educational resources. I'm privileged to introduce today's guest, Dr. Jeanne Gallée, who is a clinical scientist in the Department of Medicine at the University of Washington. Dr. Gallée is a licensed speech language pathologist practicing in the greater Washington state area. She completed her Bachelor of Arts in Cognitive and Linguistic Sciences at Wellesley College in 2016 and Doctor of Philosophy at Harvard University in Speech and Hearing Bioscience and Technology in 2021. She has been recognized as a Distinguished Early Career Professional by ASHA and a Distinguished Scholar by the Tavistock Trust for Aphasia. Her work is dedicated to improving assessment practices and functional outcomes for individuals living with aphasia and neurodegenerative conditions. Jerry Hoepner: Jeanne, it's really nice to see you again today, and to have this opportunity to have a conversation with you as a recent recipient of the Tavistock Scholar Program, and to talk about your work with individuals with primary progressive aphasia. So, thanks for being "on" today for the conversation. Jeanne Gallée: Thank you so much for having me, Jerry. I'm really honored to be here. Jerry Hoepner: Likewise, I'm really excited for this conversation, and as I just alluded to, I wanted to congratulate you on being awarded the first Tavistock Scholar with an emphasis doing work in primary progressive aphasia, and I thought maybe I could get your thoughts on being selected as a Tavistock Scholar. Jeanne Gallée: Thank you. It feels honestly incredibly remarkable in the sense that I think it represents a shift in how we're thinking about the separate diagnoses of progressive aphasia versus an aphasia that's due to an acute injury. And I'm really honored to be a part of that. I think there have been many discussions growing over the years, and I think we're
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Episode 143 Hope in Aphasia Clinical Process with Jaqueline Hinckley
In this episode you will: • Learn about the role of stress in communication and how to manage stress through coping strategies. • Learn about spirituality and spiritual practices, along with the distinctions between spirituality and religion. • Learn about the Aphasia Brief-Cope tool. • Learn about the potential adaptive value of spiritual beliefs and practices for individuals with aphasia. • Learn about how to start conversations about spirituality and aphasia. Imagine for a moment that you've lost your connection to a deeply important aspect of your life, a mental space, a conversation, a meditation, a fellowship. Aphasia can alter so many connections, but this strikes at your core. Well, there's hope. Spirituality and spiritual practices are possible after aphasia and clinicians should offer to open these doors if that is what the person with aphasia wants. Welcome to the Aphasia Access Conversations Podcast. I'm Jerry Hoepner. I'm a professor at the University of Wisconsin – Eau Claire and co-facilitator of the Chippewa Valley Aphasia Camp, Blugold Brain Injury Group, Mayo Brain Injury Group, Brain In-Com intensive brain injury program, and Thursday Night Poets. I'm also a member of the Aphasia Access Podcast Working Group. Aphasia Access strives to provide members with information, inspiration, and ideas that support their aphasia care through a variety of educational materials and resources. Hannah Wendel Griffey is an assistant professor in the Department of Communication Disorders at Brigham Young University, where she directs the PEARL Lab (Psychosocial Effects of Aphasia on the Rehabilitation of Language) within the BYU Aphasia Center. Her research examines how psychosocial factors shape recovery, participation, and quality of life for people with aphasia, with particular attention to the measurement and treatment of stress, anxiety, coping, and identity. Grounded in participation-focused frameworks derived from the ICF, including A-FROM and the Life Participation Approach to Aphasia, her work promotes culturally responsive, holistic care. A central focus of her scholarship is religion and spirituality as coping mechanisms in neurogenic communication disorders, examining how communication barriers restrict spiritual participation and how adaptations and clinician support can facilitate continued engagement and well-being.
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