Show Notes
Adam Dowling is living with SOD1 MND, a rare genetic form of motor neurone disease.
In this episode, Adam shares what it means to discover your MND has a genetic cause — not just for you, but for your family and future generations.
He talks about genetic testing and counselling, navigating conversations with his four children, and his treatment with Tofersen.
Community has also become an important part of Adam’s journey. Connecting with others affected by MND has given him support, understanding and a desire to use his own experience to help others.
“Connecting with others in the MND community has been invaluable. I want to share my journey and help raise awareness about the disease.” Adam’s story is about genetics, family, treatment, community and hope — and choosing to keep living life fully.
More from Let's Talk MND
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