Show Notes
Dr. Elizabeth Regan joins Vanessa to discuss how her skills as a researcher and her adrenal insufficiency diagnosis combined to motivate her to create the MyAI registry and be a medical detective in her own healthcare. They also lay out a vision for how the whole community can come together to further adrenal insufficiency research. Watch Dr. Regan's presentation on the MyAI registry >> Learn more about the MyAI registry >> NADF invites you to join our second annual Navigating Adr...
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Crystal-Lee Banks joins Vanessa to discuss the joys and challenges of taking on big adventures when living with Addison's disease. Crystal-Lee shares her journey from adrenal insufficiency diagnosis to Mount Kilimanjaro summit, and how she learned to embrace physical wellness through activity and rest alike. Plus they touch on why recovery from a big undertaking can be just as much of a hill to climb as the event itself. Follow Crystal-Lee on Instagram Read Crystal-Lee's story on the Addison'...
NADF Support Group leader Joanne Siegel sits down with Vanessa to discuss balancing life with multiple medical conditions, including Cushing's. Joanne details the start of the Curageous Cushing's support group and how she is working to connect members to encourage a net of support for all involved, including Joanne herself. More info: Cushing's syndromeJoin the Courageous Cushing's support groupOther NADF support groupsNADF invites you to join our second annual Navigating Adrenal Health confe...
Vanessa sits down with Jessica Cella to discuss Jessica's tireless advocacy work on behalf of the adrenal diseases community. Jessica shares a wealth of information, including tips on getting to know your local EMS, how to assemble and label your personal emergency kit, and small ways that everyone can get into advocacy to help us reach a world with less suffering and death from adrenal diseases. NADF invites you to join our second annual Navigating Adrenal Health conference: two days of expe...
Dr. Joshua Stilley stops by All Things Adrenal to talk with Vanessa about emergency medical systems: their variance between states and even counties, the importance of communicating ahead of time with your emergency care system, and ways you can prepare yourself and your loved ones to face life's most challenging moments. Visit NADF's Emergencies page for downloadable emergency treatment orders for adults and children, plus other life-saving resources. NADF invites you to join our secon...
Vanessa talks with her friend and NADF Teen Support Group co-leader Elizabeth Reidy about how Elizabeth restructured her athletic life after her Addison's Disease diagnosis. Elizabeth shares how she went from the ICU to a half marathon in six months, and how keeping a disease inventory helps her manage her adrenal insufficiency. Come for the practical tips, stay for the heartwarming story of family overcoming health obstacles together. Follow Elizabeth on Instagram @eliz_21. NADF invites...