Show Notes
Danielle Lilley and Melissa Carlton have both experienced the unimaginable: losing a child suddenly, without knowing why. After both families discovered they were affected by the rare genetic condition PPA2, they began asking difficult questions about genetic testing, sudden unexplained deaths in children and whether earlier answers could have changed their stories. Now, they are turning their grief into advocacy, determined to make sure other families have access to the answers and support they were denied.
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