Beyond the Count

FATIGUE & ITP - Part 1 - What Does Fatigue in ITP Look Like?

Beyond the Count

Show Notes

Fatigue is one of the most common symptoms experienced by people living with ITP. Yet for many patients, it's also one of the most difficult to explain. It's more than feeling tired after a busy day. It's waking up exhausted after a full night's sleep. It's struggling to concentrate, forgetting simple things, cancelling plans, and constantly weighing how much energy you have left for the day ahead. In the first episode of our ITP Fatigue Series, Danielle Boyle is joined by members of the ITP ...

More from Beyond the Count

Oct 7, 2026

ITP: More Than a Diagnosis The Relationships, Support and Community That Carry Us Through Being diagnosed with ITP can feel incredibly isolating. Suddenly you're navigating specialist appointments, blood tests, treatment decisions, and a condition most people have never heard of. But for many patients, one of the most important things they discover is that they don't have to do it alone. In this episode of Beyond the Count, Danielle Boyle is joined by ITP advocate and long-time community volu...

Sep 23, 2026

So, You've Been Diagnosed with ITP. Now What? Being diagnosed with ITP can feel like your world has been turned upside down. One minute, life feels completely normal. The next, you're learning about platelet counts, treatments, blood tests, specialist appointments, and a condition you've probably never heard of before. In this special episode of Beyond the Count, Danielle Boyle speaks directly to people recently diagnosed with Immune Thrombocytopenia and explores the questions, fears, and cha...

Aug 26, 2026

Understanding risk is important. But knowing how to ask questions, communicate what matters to you, and make confident decisions is where it all comes together. In the final episode of our Decoding Risk series, Danielle Boyle is joined by haematologist Dr Danny Hsu to explore what it really means to become a partner in your own care. Together, they discuss: the different ways patients engage with informationwhy there is no "right" way to be a patienthow to communicate your preferences and goa...

Aug 12, 2026

What happens when patient advocates from around the world come together with one shared goal: improving the lives of people living with ITP? In this special episode of Beyond the Count, Danielle Boyle takes listeners behind the scenes of the 2026 International ITP Alliance Symposium, held in Salt Lake City, Utah. As Australia's representative within the Alliance since 2019, Danielle shares how patient organisations from across the globe work together to improve education, treatment acce...

Jul 22, 2026

Decoding Risk Series — Part 3: The Words That Trick Our Brains When you read that a side effect is "common" or "rare", what do those words actually mean? For many patients, these terms can trigger fear and uncertainty because the way we interpret risk often differs from how clinicians and researchers use the same language. In Part 3 of the Decoding Risk series, Danielle Boyle is joined by haematologist Dr Danny Hsu to explore one of the biggest communication gaps in healthcare: r...

See all episodes →