
“My experiences with the extremes of post-viral illness and brain retraining/mindbody work” by riceissa
LessWrong (30+ Karma)Show Notes
Summary
Following an intense viral infection in 2019, I became ill with a mysterious chronic illness, which became progressively worse until mid-2024 when I became partially bedbound with dozens of debilitating symptoms that normal humans only experience in the months/weeks/days leading up to death. Over my years of being ill, I saw over 30 doctors/therapists/health coaches and tried well over 100 different treatments and palliatives. Most of these did nothing or made things worse, or at best provided slight relief. I try to give a sense of what it is like to live with such an illness.
In mid-2024 I began a treatment called brain retraining (also known by other names, such as the mindbody approach and mindbody work; I will use any of these terms throughout the blog post interchangeably), which cannot be explained in such a small space as this summary but which you can think of as a combination of meditation and exposure therapy, and which is widely considered to be a scam in the "complex chronic illness space" (a vague and spread-out space of people who suffer from illnesses such as ME/CFS, MCAS, mold illness, post-viral illness, long COVID, chronic Lyme disease [...] --- Outline: (00:13) Summary (04:20) Introduction (08:11) A quick summary of my illness from 2019 to May 2024 (11:12) List of doctors and treatments I tried (18:44) Back to my May 2024 post (20:30) Nystatin withdrawal and crash (May and June 2024) (22:31) Visiting the hell realms (what summer 2024 was like) (35:07) What about post-exertional malaise (PEM)? (40:41) Brain retraining (44:46) An outline of the Gupta Program (53:28) My experience with the Gupta Program (55:18) Branching out: Dan Buglio, Miguel Bautista, and Helmut Koeckritz (01:09:23) Is brain retraining the same thing as therapy or meditation? (01:21:23) Legitimate scams, and the poor marketing of brain retraining (01:24:13) How I almost figured out mindbody stuff several times in the past, and why I gave up on it each time (01:32:27) Generalizing from my own experience (01:35:46) Luck-based medicine? and medical miracles (01:38:32) Being stuck in my head (01:43:36) Why did I become so ill? Understanding the deeper reasons for mindbody conditions (01:48:06) Where I am now, and what is next? The original text contained 17 footnotes which were omitted from this narration. ---
First published:
October 30th, 2026
Source:
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Narrated by TYPE III AUDIO.
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