Fabry Care with a Functional Perspective with Dr. Seema Kanwal

Grief is part of being human, but almost nobody is taught what to do when it arrives. If you are living with loss, supporting someone who is, or facing anticipatory grief in the Fabry community, this conversation with Marny Williams offers the clarity and comfort you need right now.

In this episode, Dr. Nadia Ali discusses the importance of mental health in the Fabre journey, how to recognize early warning signs of stress, anxiety, and depression, and practical strategies for self-care and effective communication with healthcare providers.

Donna Strauss's journey with Fabry disease reveals how resilience, hope, and community can transform despair into purpose. After losing her husband to this rare disease, Donna shares insights on caregiving, the emotional toll of diagnosis, and her commitment to advocacy. Discover how education and community can empower families to face the future with courage. Donna’s story underscores a vital message: even in the darkest hours, hope and community are your greatest allies, reminding us that strength is the courage to keep moving forward.

Learn about Jerry Walter's extraordinary journey living with Fabry disease, including his experiences with cardiac complications, a heart transplant, and his inspiring perspective on resilience and living a full life. This episode offers valuable insights into managing Fabry disease and the power of a positive mindset.

In this episode, we're joined by Dr. Michael West, a leading nephrologist, to explore the impact of Fabry disease on kidney health. We discuss the early signs of kidney involvement, the importance of regular monitoring, and the latest advancements in treatment options. Dr. West shares his expertise on managing kidney function and offers hope for future therapies. Discover how proactive steps can protect kidney health and enhance the quality of life for individuals affected by Fabry disease.