Show Notes
What if one of the biggest barriers in health care is not access to treatment, but access to your own data?
In this episode, Hugo Campos, patient advocate, creative strategist, and participant ambassador, shares how his diagnosis with hypertrophic cardiomyopathy led him to advocate for patient agency and access to personal health data. After receiving an implantable cardioverter defibrillator, he discovered that data from his own body was shared with clinicians and manufacturers, but not with him. This realization sparked his work in data liberation and his challenge to traditional health care models. He explores how withholding data undermines trust, how patient communities drive change, and how AI can support patients by helping them ask better questions.
Tune in to hear why better health care starts with giving people more visibility, more voice, and more control over their own lives.
Resources:
Connect with and follow Hugo Campos on LinkedIn.
Visit AI Patients at aipatients.org.
Read the National Academy of Medicine commentary on critical AI health literacy and patient empowerment here.
Learn more about Turn on the Lights here.
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