Show Notes
In this episode I’m joined by Shona Larrigan, talking about her 8 month old baby Harry, who has Prader-Willi syndrome. We discuss the emotional impact of receiving a diagnosis, the importance of therapy and support, and the need to live in the present. Shona shares her experiences with public perception and the conversations surrounding Harry's condition, and her hope for the future with potential advances in medication. We also talk about trying to get the balance right between personal well-being and the desire to raise awareness, especially in the early days of your journey.
This episode is released in Prader-Willi Awareness Month and if you need support with a diagnosis here are some helpful links including the one Shona mentions:
Prader-Willi Association Ireland https://pwsai.ie/
Prader-Willi Association UK https://www.pwsa.co.uk/
Tags: Prader-Willi syndrome, new diagnosis, additional needs, new parent
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It’s the September reset and I’m back with a little post summer update and asking what you want to hear on the podcast moving forward. Get in touch via Instagram @thesendmumclub
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