Episode 161 | April is Sarcoidosis Awareness Month so let's See Sarcoidosis!
Sarc Fighter: Living with Sarcoidosis and other rare diseasesShow Notes
April is Sarcoidosis Awareness month, and that's something to sing about. And walk about. And talk about. And so much more. In this podcast, I'll be speaking with Tricha Shivas, Chief of Staff and Strategy at the Foundation for Sarcoidosis Research, and Kate Anistasia, Director of Global Patient Programs. They have a whole menu of options that will excite you when it comes to way to celebrate and participate in Sarcoidosis Awareness month -- including a brief sing-along with the Sarc Fighter theme song, Zombie. This is gonna be fun. So listen in and prepare to get moving to make people See Sarcoidosis.
Show notes Go to the FSR home page for info on Sarcoidosis Awareness Month. https://www.stopsarcoidosis.org/ Die Laughing: www.dielaughing.org Support Royce: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc
How to take the Veterans survey:
Log in to your FSR-SARC Patient Registry account. Go to your Dashboard or Surveys/Studies tab. Look for the Military Veterans Survey and click “Start” to begin. Please note – you will need to complete the Baseline Questionnaire before having access to the FSR Military Veterans Survey.
https://www.stopsarcoidosis.org/patient-registry/
MORE FROM JOHN: Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/ Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/ Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/ email me [email protected] #sarcoidosis #sarcoidosisawareness #particulatematter
More from Sarc Fighter: Living with Sarcoidosis and other rare diseases
Jeanne Parson lives in California where she is fighting pulmonary sarcoidosis as well as cystic fibrosis. It can't be fun. She started noticing there was a problem where her daily walks became difficult. Now she spends as much time managing her healthcare as she does walking -- or playing in a band which she also loves.
Promising new research identifies three genes that may play a role in why people do or do not get sarcoidosis. Also a look at why hard work makes us feel better going all the way back to the old world philosophers, and how that might help you in your battle with sarcoidosis.
Brett Wittner has run a lot of marathons. A lot. But when her tried to make a comeback something was wrong with his lungs. Scans showed it was sarcoidosis. Yet, he is running the New York City Marathon as a fundraiser for the Foundation for Sarcoidosis Research. Listen in as he shares his story as a runner and sarcoidosis patient.
Kimberly Cleary lives in Chicago, where she is dealing with severe pulmonary Sarcoidosis. After a long path to diagnosis, she is working with her medical team to find a treatment that works for her. It has't been easy.
Susan Smith has cardiac Sarcoidosis. One day she was in spin class, and all of a sudden her life went into a spin. Sarcoidosis has raised its ugly head, and now she is taking things day by day as she works with her medical team to find a solution to what seems to be a worsening problem.