S6 Ep9: Paula on living well with secondary breast cancer

After finding a lump just before her 40th birthday, Helen Addis was diagnosed with breast cancer. This inspired her to throw herself into all sorts of campaigns, ultimately being awarded an MBE. Helen joins Laura to talk about how breast cancer radically changed her life, including parenting three young children during treatment and spearheading the Change + Check national awareness campaign. They discuss Helen's passion for breast awareness as well as her campaigning for access to the drug Enhertu, and reflect on how the friends she's lost within the breast cancer community have made her even more determined to campaign for change. Helen also shares how it felt when she found she'd been awarded an MBE, completely out of the blue. Helen discusses her personal experience of taking fezolinetant, also known as Veoza, for hot flushes. This medicine may not be suitable for everyone who has had breast cancer. Speak to your oncology team before starting or stopping any treatment. Find out more about the Change + Check campaign. Listen to Hannah Gardner's episode of the Breast Cancer Now podcast. Listen to Caroline Leek talk about parenting with cancer. You can also watch this episode on YouTube. Key topics: 02:53 Helen's breast cancer diagnosis 06:03 Helen's treatment for breast cancer 08:39 Change + Check campaign 13:14 The importance of campaigning 15:13 Helen's campaigning work 19:55 Losing friends in the cancer community 23:38 Finding meaning in your own life 24:45 Parenting during treatment for breast cancer 30:47 Genetic testing for hereditary breast cancer 33:39 Helen talks about being awarded an MBE 38:34 Helen's experience with fezolinetant 42:08 The unexpected ways cancer can change your life 43:53 How to follow Helen 45:05 Helen's takeaways from this episode

What is metastatic breast cancer? How does it spread? What happens after diagnosis? In this episode, Breast Cancer Now nurse Catherine Priestley joins Laura for an informative chat about metastatic, or secondary, breast cancer. They discuss the signs and symptoms to look out for, and explain how and where it can spread around the body. Laura shares her own experience of a incurable breast cancer, including scan anxiety and the ways she's learned to live with it. She discusses with Catherine the importance of peer support and holding on to hope while living with uncertainty. They also explain how Breast Cancer Now’s nurses and support services can help people living with metastatic breast cancer, as well as their friends and families. Read more information about metastatic breast cancer. You can call the Breast Cancer Now helpline on 0808 800 6000. Ask our nurses a question. Talk to someone like you. Find group support for people with metastatic breast cancer. Support for parents with cancer from Fruitfly Collective. Listen to Caroline Leek on parenting with cancer. Listen to Caroline Leek on talking with children about death and grief. Support for people with metastatic cancer from Make 2nds Count. Listen to Claire from Make 2nds Count. You can also watch this episode on YouTube. Key topics: 2:16 What is metastatic breast cancer? 3:13 How does breast cancer spread to other parts of the body? 6:16 What does 'terminal' mean? 8:02 What does 'de novo' mean? 11:05 The signs and symptoms of metastatic breast cancer 21:54 How to get any concerns you have checked out 24:58 I've been diagnosed with metastatic breast cancer. What now? 27:39 Finding hope with a metastatic cancer diagnosis 29:06 Coping with the emotional impact of a metastatic diagnosis 38:03 How long am I going to live? 42:39 Planning your life with metastatic breast cancer 44:20 Treatments for metastatic breast cancer 44:55 Treatment for ER+ metastatic breast cancer 47:03 Treatment for HER2+ metastatic breast cancer 48:08 Treatment for triple negative metastatic breast cancer 49:16 What is disease progression? 50:13 Coping with scanxiety, the worry before a scan 53:57 Clinical trials for metastatic breast cancer 58:00 What happens when treatment options run out? 1:01:44 Financial support 1:03:59 Further support for anyone affected by metastatic breast cancer

In this episode Laura speaks to Dani Binnington about the often overlooked impact of a cancer-induced menopause. They are also joined by Breast Cancer Now nurse Louise Grimsdell. They discuss their experiences of the menopause, and many symptoms such as hot flushes, vaginal dryness, low libido, fatigue, joint pain, anxiety, depression, and weight gain, and the profound impact these symptoms can have on quality of life. They talk about practical ways to manage the symptoms and the importance of seeking support from healthcare professionals rather than suffering in silence. Laura, Dani and Lou talk about how significantly the menopause, especially after cancer, can affect so many aspects of life, and where to find support. Find Dani's organisation Menopause and cancer and @menopause_and_cancer Key Topics 03:35 Dani's diagnosis 07:11 What is menopause? 08:10 Dani's experience of menopause 13:07 Laura's experience of menopause 17:12 Dani on the NFP Menopause and cancer 22:45 The ultimate goal 25:17 Laura on the importance of acknowledging how the menopause affects you 29:15 The most asked menopause questions 34:27 What are hot flushes, and what can be done about them? 43:04 The effect on menopause on sex and intimacy 55:55 Dating and the menopause 01:02:00 Affects on fertility 01:08:55 Mental health 01:13:35 Services of menopause and cancer 01:14:35 The impact of exercise on symptoms of menopause 01:21:14 Nutrition and diet 01:25:15 Weight gain through menopause and cancer treatment 01:28:11 Where to find support and resources

Being diagnosed with breast cancer might leave you with so many questions. Why has this happened to me? How do I tell my children? What treatment will I have? Will I lose my hair? Where can I find support? In this episode, Breast Cancer Now nurse Jane Murphy answers your questions about primary breast cancer. She explains what to expect after a diagnosis, tips for surgery, genetic testing, diet, exercise, telling people about your diagnosis, and dealing with work. Jane also discusses how Breast Cancer Now can support you through this uncertain time. She shares what it's like to work on the helpline and ask our nurses services, provide reassurance and support to people for many years. You can call the Breast Cancer Now helpline on 0808 800 6000. Or ask our nurses a question on our website. You can talk to someone like you. Support and events for younger women. Support for moving forward after treatment. Support for parenting with cancer at Fruitfly Collective. Listen to our episode with Caroline Leek about parenting with cancer. Support for working with cancer at Working With Cancer. Listen to our episode with Barbara Wilson about working with cancer. Timestamps: 1:26 Why did I get breast cancer? 2:52 How do I tell people I have breast cancer? 4:48 How do I tell my children about my diagnosis? 6:40 What treatment will I have for breast cancer? 8:26 Am I going to die? 9:12 What does oestrogen positive (ER+) mean? 10:08 What does triple negative mean? 10:52 Do I need to stop taking HRT? 11:41 Can I still take supplements during chemotherapy? 12:24 Will I lose my hair with chemotherapy? 13:50 Will the cancer spread while I wait for surgery? 15:59 I want to have my breasts removed but my surgeon says I only need a lumpectomy. 17:40 How do I choose my breast reconstruction? 20:11 How can I talk to someone else who's been through this? 20:48 How will treatment affect my fertility? 22:05 How do I request genetic testing? 23:34 Should I be worried about my children getting breast cancer? 24:28 What it's like for Jane working at Breast Cancer Now. 27:29 Do I need to change my diet? 28:03 Can I still exercise? 29:00 Can I still drink alcohol? 29:46 Did I cause my breast cancer? 31:22 How do I deal with work? 32:47 What are the side effects of hormone therapy? 34:21 What support is there?

In this episode of the Breast Cancer Now podcast, Laura speaks to her mum Christine. She joins us to talk about being the parent of an adult child with cancer, and their family’s long history with breast cancer. They talk about Christine’s mother Hetty, who died from breast cancer age 43, and her sister Heather, who also had breast cancer. Laura reflects on her personal experiences of breast cancer, being first diagnosed when she was 29, and then again in 2022 with metastatic breast cancer, and the emotional impact this had on the family. They discuss discovering that they carry a gene mutation PALB2, which has helped to explain the pattern of breast cancer across generations. Despite the challenges, they talk about what cancer has taught them, how they both focus on living life now, making memories and appreciating the support and treatments available today. You can watch this episode on Youtube. Key topics: 03:05 Christine's mother's diagnosis 13:30 Awareness of breast cancer growing up 14:35 Laura's primary diagnosis 21:20 What it was like parenting a grown up child with cancer 24:10 Fear of the breast cancer returning 26:51 Christine's sister, Heather's diagnosis 30:50 Laura's metastatic diagnosis 35:30 How Christine felt about Laura's metastatic diagnosis 37:10 What it feels like, as the person who hasn't had cancer 39:10 Genetic mutations and implications 48:00 Risk factors and differences in lifestyles contributing to breast cancer 52:20 The impact of breast cancer on living life to the fullest 53:14 What Christine has learnt about breast cancer 56:36 Laura's dad 57:50 Laura reflecting on making decisions about her fertility treatment 01:01:08 One thing to take away from this episode