Show Notes
As May comes to a close, Breathe In wraps up CF Awareness Month with two final sprint interviews. Lise-Courtney D'Amico rejoins the podcast to chat with Gunnar about how their college experiences differed despite going to the same university - Boston College. They also talk about their next chapters in life as both of them are about to embark on a two year MBA journey, Gunnar to Tuck at Dartmouth and Lise-Courtney to Booth at University of Chicago. Tiffany is joined by Hailee Higley, 23, a mother living with cystic fibrosis. Their conversation begins with learning how Hailee's grandma was diagnosed with CF in her 50's when Hailee was diagnosed. The two then chat about Hailee's amazing pregnancy that she says her baby "healed" her CF. Hailee's story is amazing and she surprises the podcast with a new update on her family!
More from Breathe In: A Cystic Fibrosis Podcast
This week on Breathe In, Tiffany is on her own again while Gunnar battles his way through final exams. Tiffany is joined by a new voice on the podcast, Holly Seay, 24, from Georgia, a newlywed with CF. Holly takes us through her life with CF and how she met her now husband. Prior to their wedding, Holly and her now husband never lived together. Holly talks about the adjustment period and how her husband has acclimated to the CF life. She gives advice to those that are wanting to get married. The podcast ends with Holly and Tiffany's recommendations for the week.
On this episode of Breathe In, Gunnar takes the day off and Tiffany takes over with a returning guest, Audrey Kostelec, 23 from Washington State. You may remember Audrey from the emergency podcast we had on FaceBook Live in March. This time we talk about Audrey and her CF journey. Audrey explains how she was misdiagnosed and has recently been placed on disability. The two chat about how being on disability has helped Audrey's health in a positive way. They end the podcast with the usual fun recommendations segment (Girly ones, sorry guys!). You won't want to miss this episode!
A mere few days following the FDA's approval of Trikafta, cystic fibrosis patients across the United States began dosing. This week's podcast looks back at Gunnar's time in the triple combo study. Think of this podcast as a follow to Gunnar's blog over on GunnarEsiason.com. Gunnar talks about both the immediate and long term affects of having been on the medication and what his hopes are for the CF community. Gunnar and Tiffany reaffirm the scientific community's commitment to a treatment for the final 10% of CF patients and a cure for all CF patients.
Gunnar and Tiffany welcome back the podcast after a brief (unplanned!) hiatus. Tiffany announces that she started working a new job and has begun living out her goal of working full time. Gunnar talks about fighting through a round a midterms in the first quarter MBA term. The duo chat about getting their flu shots, why CF community members must adhere to flu shot recommendations from the CDC and how patients and families can be proactive during peak cold and flu season.
After a few weeks off, Gunnar and Tiffany return to the podcast with Gunnar's girlfriend, Darcy. This time, though, Darcy puts on her social worker hat and takes the podcast through a clinical lens into the world of self care. It's established early on in the podcast that self care is a bit of a misnomer these days because of Instagram, while Darcy actually defines it as doing things that are often uncomfortable or that we avoid, and ultimately contribute to bettering our minds, bodies and spirits. The podcast is then broken down into seven buckets: 1) Saying No 2) Accepting Help 3) Practicing Self Compassion 4) Letting go of what you can't control 5) Making time for things or people that are important 6) Setting boundaries with people that bring you into their drama or dysfunction 7)Making a long list of short term and long term goals