11. Our story with laryngeal cleft, dysphagia, and thickened liquids

My daughter has a laryngeal cleft (deep intraaryteniod notch) that required her to have two surgeries, be on honey thickened liquids for over a year, and attend feeding therapy. Here is our story!

How an oversupply, overactive letdown, tongue tie, and lip tie complicated things

When we knew something was wrong

The surgery and swallow study that led to her diagnoses

Her failed post-op swallow studies

Navigating thickened liquids at daycare and in everyday life

How we chose our treatment plan

The wean off of thickeners

How she is doing today

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Happy feeding! 🥦

With love, Dr. A

Disclaimer: This video is intended for educational purposes only. It is not intended to diagnose or treat any medical condition, or to provide medical nutrition therapy. If you are concerned about yours or your child's nutrition or eating habits, contact your dietitian.

Articles/resources I mentioned 👇

Type 1 laryngeal cleft: a multidimensional management algorithm

Management of Type I and Type II laryngeal clefts: controversies and evidence

Feeding Matters: an organization supporting kids with feeding disorders

@pediatricfeedingslp (Brianna Miluk): my favorite pediatric feeding/swallowing SLP on IG

Dysphagia Outreach Project