Navigating the service cliff - Supporting autistic youth transition into adulthood

For many families of autistic young people, leaving school feels less like a gentle transition and more like falling off a cliff into a fragmented, underfunded adult service system where no one is clearly in charge. In this Mind the Kids episode 'Navigating the service cliff - Supporting autistic youth transition into adulthood', Mark Tebbs speaks with Professor Julie Lowndes Taylor from Vanderbilt University Medical Center about ASSIST (Advocating for SupportS to Improve Service Transition), a 12‑week parent advocacy programme designed to equip families with the knowledge, skills and confidence to navigate that maze.​

Drawing on a large multi-site randomised controlled trial of 185 families, they discuss how ASSIST weaves together national-level information on adult disability services with local expert input, how moving the programme online during COVID reshaped both accessibility and peer support, and what the data show about changes in parents’ advocacy skills, service knowledge and actual access to government-funded programmes. The conversation also looks ahead to next steps, including using the ASSIST curriculum to train peer navigators, tackling structural barriers such as underfunding and provider shortages, and ensuring that efforts to boost advocacy do not inadvertently widen existing inequities. ​ You can read the main JCPP paper discussed in this episode, “Effects of a parent advocacy intervention on service access for transition-aged autistic youth,” via https://doi.org/10.1111/jcpp.70036

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