What is Interoception and How Does it Affect Autism?
Autistic and ADHD Kids Parenting Strategies: Every Brain is DifferentShow Notes
Samantha and Lauren discuss Samantha’s son’s years-long struggle with chronic, debilitating pain (legs, back, migraines) and how a pain clinic evaluation led to a new explanation: sensory processing disorder with heightened interoception. After extensive normal test results, a multidisciplinary team suggested his internal body-signal sense may be “turned up,” intensifying pain perception.
Samantha and Lauren define interoception (internal sensations like hunger, bathroom needs, heart rate, temperature, pain, and emotions) using occupational therapist Kelly Mahler’s framework and note that interoception differences can be muted, intense, or distorted, affecting interpretation of sensations and emotions.
The episode emphasizes validation, shifting from “why does he hurt?” to “what support does his nervous system need?”, and introduces Mahler’s “body, emotion, action” approach, encouraging parents to become “body detectives” with neutral body check-ins and curiosity rather than telling kids to “calm down.”
More from Autistic and ADHD Kids Parenting Strategies: Every Brain is Different
Samantha and Lauren discuss why children may struggle with tasks they seemed able to do the day before (like getting dressed, brushing teeth, or doing homework) and how parents can respond without assuming laziness or defiance.
Samantha and Lauren interview Susan Minor, a certified relationship coach trained in the Laura Doyle method, about rebuilding connection in marriage, especially for parents under the stress of raising neurodivergent children.
Samantha and Lauren interview Dalisse, an autistic author and mom of two autistic boys, living in Barcelona, Spain, who wrote the five-book Loving Pieces series. Dalisse shares her family’s journey since her oldest son's diagnosis at 17 months, discussing early challenges such as meltdowns, guilt, grief, and uncertainty, and advises parents to give themselves time, take things one day at a time, and not treat bleak predictions as fixed outcomes.
Samantha and Lauren discuss out-of-the-box ways to teach neurodivergent kids kitchen skills. They share practical strategies to include kids without overwhelm by breaking cooking into clear steps, assigning specific tasks, and using visuals, play kitchens, and practice activities like pouring between measuring cups or “mud pie” measuring. They cover progressive knife and cutting practice with kid-safe tools, softer foods, and Play-Doh, while emphasizing safety routines.
Samantha and Lauren discuss Samantha’s weekend camping trip with extended family and how a recent change in her son’s ADHD medication affected his behavior. Her son had previously thrived on stimulant medication, describing a “quiet” brain and better focus, but after switching meds due to appetite concerns, he became unusually emotional, restless, and reactive which led to conflicts, safety concerns, and relatives criticizing Samantha’s parenting strategies and implying he needed more discipline.