
Show Notes
In this episode, Izzy looks at the reality of living with Tourette Syndrome, far beyond the stereotypes. Izzy's joined by her brother Magnus, whose daughter was diagnosed at age 7, and Katie Skinner from Tourette’s Action. Together, they discuss stigma, self-discovery, intrusive thoughts, ADHD, school support, and how we can build a more compassionate world for neurodivergent children.
NHS – Where to Get Help for Self-Harm
The NHS provides guidance on seeking help for self-harm, including advice on speaking to a GP and accessing support services - link here
Chapters:
02:32 – The dream: Acceptance and inclusion for those with Tourette’s
04:03 – Alma’s early symptoms and family response
07:21 – What Tourette Syndrome actually is (Katie explains)
11:29 – Misconceptions: Tourette’s is more than swearing
16:54 – Why suppressing tics can be harmful
19:56 – The social toll: Being forced to advocate
22:07 – Acceptance, trauma and breaking cycles
25:00 – Pain, isolation and the complexity beneath the tics
27:29 – School struggles: Inclusion, ignorance and the “What If” board
35:00 – Music, exercise and finding peace
40:00 – How Tourette’s Action can help families today
42:29 – Magnus's ADHD discovery and mental health journey
52:15 – The care gap: Lack of NHS services and support
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