Fit but WTF: Vicki’s Lipedema Diagnosis Journey, Surgery Decisions, and Realistic Expectations
Stronger than LipedemaShow Notes
Cindy welcome's Vicki from the UK, a qualified nutritionist, menopause coaching specialist, mindset coach, PT, and strength and conditioning coach who created the Instagram account “fit, but WTF” about eight months ago to document her lipedema journey. Vicki explains the name reflects her experience of being fit and active for years while her body—especially her legs—never responded as expected. She shares how she first learned about lipedema while coaching a client in 2023, researched it, and recognized the symptoms in herself, including having a lean, defined upper body but legs that didn’t change despite intense training. An initial UK “specialist” dismissed her, saying she didn’t have lipedema and “just needed liposuction,” leaving her crushed.After completing two HYROX events, Vicki posted a viral photo in shorts that generated thousands of messages, many urging her to seek a second opinion. She found the UK lagging behind Europe in lipedema care and consulted doctors in Madrid and Turkey, ultimately receiving confirmation from Dr. Giorgio in Cyprus, with whom she had her first lipedema surgery two weeks prior (arms). She discusses the emotional impact of diagnosis—relief, grief, frustration, and guilt—and the importance of early recognition so women aren’t told to “try harder.”The conversation covers the controversy about when to pursue surgery versus conservative management, wait times for reputable surgeons, and the long recovery timeline. Vicki describes her surgical plan with Dr. Giorgio, including an upcoming 360-degree leg procedure in 16 weeks, and notes that full results can take about a year after each surgery, making the overall process roughly two years.Vicki’s closing advice is to seek diagnosis early—primarily to understand what the body can and can’t do, stop self-blame, and move forward with self-compassion and informed management. 00:00 Welcome to Stronger Than Lipedema (Show Mission & Hosts)00:55 Meet Vicki from “Fit, But WTF” + Why She Started the Page02:46 Why Early-Stage Lipedema Gets Missed (and Why She Speaks Up)03:58 Her Diagnosis Journey: Client Clue, Dismissed by a “Specialist,” Then Vindicated06:46 Finding Real Experts in Europe + Surgery with Dr. Giorgio in Cyprus08:51 Conservative Care vs Surgery: The Big Decision (and Timing Controversy)11:01 Arms Progression, Hormones, and “It Needs Somewhere to Go” After Leg Surgery18:32 Recovery Reality Check: Timelines, Multiple Surgeries, and Mental Whiplash23:19 Before/After Expectations, Body Dysmorphia, and Years of Being Gaslit30:16 Getting Diagnosed in the UK: NHS Gaps, Waitlists, and Self-Advocacy32:31 Access in the US & Canada: Specialists, Coverage, and Insurance Headaches36:24 Why Surgery Became the Choice: Progression, Age, and Protecting Quality of Life38:13 The ‘Discipline’ Trap: Overtraining, Bodybuilding, and Misreading Lipedema40:50 Social Media Pushback: ‘It’s Normal’ Comments and the Need to Differentiate47:20 Basics + Layers: Movement, Protein, Strength Training, Compression, and MLD58:10 Final Advice & Wrap-Up: Get Diagnosed Early, Be Kinder to Yourself Follow us on Social media!!! Kristy's Contact information: IG https://www.instagram.com/dellalunawellness/ FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr Website is below Kristy Dellacroce, MS,OTR/L, MLD-C Sunrise Healing, LLC Dellalunawellness.com Lipedema Advocate 856-297-7437 Cindy contact information FB: https://www.facebook.com/withcindyhowell Private FB Group: https://www.facebook.com/groups/7021999704562921 IG: https://www.instagram.com/lipedema_withcindyhowell/ Cindy Howell RN PHC MPCH Website: www.withcindyhowell.com Lipedema advocate: 860-550-1161 Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/ Free surgery course: https://l.bttr.to/6cATB
Connect with Vickihttp://www.veganmacros101.net/ https://www.instagram.com/fitbutwtf/
More from Stronger than Lipedema
Understanding Lipedema Care With Dr. Ellen Derrick: Diagnosis, Inflammation, and Better Medical SupportHosts Cindy and Kristy welcome Dr. Ellen Derrick, a Seattle-based double board-certified general and vascular surgeon also certified in obesity medicine, to discuss lipedema medicine, an emerging specialty focused on diagnosis, non-surgical management, and pre- and post-operative support for lipedema reduction surgery. Dr. Derrick explains that lipedema care lacks clear evidence-based guidelines compared to diseases like atherosclerosis, but emphasizes inflammation as a key driver influenced by stress, comorbid conditions (including venous insufficiency, MCAS, and Ehlers-Danlos), hormones, and especially processed foods. She describes lipedema through the lens of capillary dysfunction and disrupted fluid exchange leading to swelling, pain, and fibrosis. The conversation covers challenges educating families and clinicians, the need for earlier screening and medical training, and Dr. Derrick’s efforts on social media and building a provider directory to improve access to informed care.00:00 Welcome to the Show01:40 Meet Dr Ellen Derrick02:16 What Is Lipedema Medicine04:32 Patient First Approach05:49 Before Surgery Strategies09:47 Inflammation Drivers11:17 Food and Nutrition Talk12:57 How She Found Lipedema16:15 Explaining Lipedema Simply18:33 Capillary Traffic Jam24:44 Symptoms and Comorbidities28:05 Talking With Family33:48 Fixing Organized Medicine39:24 Doctors on Social Media44:02 Where to Find Dr Derrick45:55 Final Takeaways Not Sure What Your Next Step Should Be? You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help. In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later. Ready to put the pieces together? Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdl Follow us on Social media!!! Cindy contact information FB: https://www.facebook.com/withcindyhowell Private FB Group: https://www.facebook.com/groups/7021999704562921 IG: https://www.instagram.com/lipedema_withcindyhowell/ Cindy Howell RN, CLT, MPHC Website: www.withcindyhowell.com Lipedema advocate: 860-550-1161 Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/ Free surgery course: https://l.bttr.to/6cATB https://www.instagram.com/stronger_than_lipedema_podcast/ Kristy's Contact information: IG https://www.instagram.com/dellalunawellness/ FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr Website Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.com Lipedema Advocate 856-297-7437 This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHP Carla treats Lipedema, hormones and weight optimization Website:CarlaWhortonagnp.com https://www.instagram.com/carlawhortonnp/ https://www.facebook.com/carla.whorton.np Facebook: Dr. Ellenderrick Instagram: @drellenderrick TikTok: @drellenderrick Website: drellenderrick.com Linktree: https://linktr.ee/drellenderrick
Hosts Cindy and Kristy welcome back Dr. Francois, an emergency medicine physician subspecialized in venous and lymphatic medicine in northern Virginia, to discuss how venous disease and lymphatic dysfunction intersect with lipedema. She explains that many patients seek venous evaluation as an insurance “checklist” step before lymph-sparing liposuction, and she often delays venous procedures until 1–2 years post-op when seen afterward. Dr. Francois outlines venous disease as chronic “venous hypertension,” describes risks like increased blood clots, and details treatment options (compression, pool therapy, and procedures that close insufficient veins via heat, glue, irritation, or phlebectomy) while noting recurrence can occur. The conversation emphasizes whole-body thinking, the importance of compression and conservative care, what “lymph-sparing” aims to avoid, patient self-advocacy amid common gaslighting, and ongoing insurance barriers to covering compression and care.00:00 Welcome to the Show01:40 Meet Dr Francois02:39 Veins Before Surgery07:17 Why Vein Disease Matters09:39 Whole Body Perspective13:22 Self Advocacy in Care24:04 Vascular Health and Lipedema30:58 Vein Procedures Explained35:00 Compression and Recovery37:56 Pneumatic Compression Wins39:00 Pool Therapy Basics40:40 Lymph Sparing Liposuction50:38 Why Compression Matters54:02 Insurance Coverage Battles01:00:20 Building Patient Community01:04:42 New Northern Virginia Hub01:08:03 Advice and Closing Not Sure What Your Next Step Should Be? You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help. In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later. Ready to put the pieces together? Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdl Follow us on Social media!!! Cindy contact information FB: https://www.facebook.com/withcindyhowell Private FB Group: https://www.facebook.com/groups/7021999704562921 IG: https://www.instagram.com/lipedema_withcindyhowell/ Cindy Howell RN, CLT, MPHC Website: www.withcindyhowell.com Lipedema advocate: 860-550-1161 Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/ Free surgery course: https://l.bttr.to/6cATB https://www.instagram.com/stronger_than_lipedema_podcast/ Kristy's Contact information: IG https://www.instagram.com/dellalunawellness/ FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr Website Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.com Lipedema Advocate 856-297-7437 This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHP Carla treats Lipedema, hormones and weight optimization Website:CarlaWhortonagnp.com https://www.instagram.com/carlawhortonnp/ https://www.facebook.com/carla.whorton.np
Lipedema Support Tools with Katie of 3 Bluebirds: Softening Tissue, Cupping, Compression, and Sustainable CareHosts Cindy and Kristy welcome Katie, an occupational therapist and lymphatic specialist of 20 years and owner of 3 Bluebirds, who explains her holistic approach and how she began focusing on underserved women with lipedema. They discuss gaps in medical education about the lymphatic system and how Katie gently raises the possibility of lipedema with clients by asking about heaviness, bruising, and other common symptoms. Katie emphasizes that lipedema care is not “cookbook,” recommending softening fibrotic tissue before manual lymph drainage using methods like gentle myofascial release, a spiky ball, and properly taught cupping, keeping pain under 1/10 to avoid inflammation and improve compliance. They cover overwhelm from doing too many conservative measures, individualized compression use (including post-surgery timelines), favored garment brands, and emerging modalities like shockwave therapy. Katie shares top starter steps, compression, tissue-softening, basic nutrition and hydration, and journaling, plus her virtual courses and lipedema retreats with Bonnie, including an upcoming Arizona retreat.00:00 Welcome to the Show01:35 Meet Katie and 3 Bluebirds02:55 OT Background and Lymphatics06:29 Spotting Lipedema in Clients08:43 Why Katie Advocates12:55 First Sessions and Debunking Online Info14:06 Softening Tissue Before MLD15:13 Tools Like Cupping and Spiky Ball19:19 Pain Rules and Staying Consistent24:54 Where to Cup and Virtual Course27:13 Shockwave Therapy Talk28:14 Shockwave Trial Results29:59 Skin Tightening Decisions31:28 Choosing Surgeons Wisely33:14 Compression After Surgery35:37 Best Compression Brands37:52 Flight Prep and Wrapping39:51 Top Self Care Essentials42:02 Arizona Retreat Details45:22 Virtual Courses and Coaching46:40 Where to Find Them47:26 Episode Closing MessageNot Sure What Your Next Step Should Be? You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help. In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later. Ready to put the pieces together? Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdl Follow us on Social media!!! Cindy contact information FB: https://www.facebook.com/withcindyhowell Private FB Group: https://www.facebook.com/groups/7021999704562921 IG: https://www.instagram.com/lipedema_withcindyhowell/ Cindy Howell RN, CLT, MPHC Website: www.withcindyhowell.com Lipedema advocate: 860-550-1161 Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/ Free surgery course: https://l.bttr.to/6cATB https://www.instagram.com/stronger_than_lipedema_podcast/ Kristy's Contact information: IG https://www.instagram.com/dellalunawellness/ FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr Website Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.com Lipedema Advocate 856-297-7437 This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHP Carla treats Lipedema, hormones and weight optimization Website:CarlaWhortonagnp.com https://www.instagram.com/carlawhortonnp/ https://www.facebook.com/carla.whorton.np
Navigating Insurance, Surgery Prep, and Realistic Expectations in Lipedema Care (Part 2 with Dr. Volshteyn)Cindy and Kristy conclude part two of their interview with Dr. Volshteyn on Stronger Than Lipedema, They discuss why BMI is often misleading for lipedema patients and how insurers rely on shifting metrics, requiring clinicians to build detailed, patient-specific cases through appeals and peer-to-peers. Dr. Volshteyn describes insurance barriers including inconsistent medical director knowledge, arbitrary restrictions (e.g., fat-removal limits), delayed or denied payments even after approvals or single case agreements, and how insurance incentives can distort pricing. He outlines pre-op expectations (diet, exercise, stable weight, compression/pump use, social support, psychological stability, and often tirzepatide) and strict post-op protocols (double-layer compression, MLD/pump use, hydration/diet), emphasizing surgery remediates symptoms but ongoing management is required, especially around menopause, and sharing details on compression options, recurrence patterns, and a two-surgeon approach enabling spinal anesthesia.00:00 Welcome to the Show01:41 Interview Part Two Begins01:48 BMI and Insurance Metrics03:41 Fighting for Coverage10:20 Why Surgeons Avoid Networks17:06 Insurance Incentives Exposed18:44 Pre Op and Post Op Protocols23:38 Tech Updates and Supplements28:28 Compression Tips and Fit35:24 Surgical Volumes and Anesthesia42:26 Closing and Next Steps Not Sure What Your Next Step Should Be? You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help. In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later. Ready to put the pieces together? Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdl Follow us on Social media!!! Cindy contact information FB: https://www.facebook.com/withcindyhowell Private FB Group: https://www.facebook.com/groups/7021999704562921 IG: https://www.instagram.com/lipedema_withcindyhowell/ Cindy Howell RN, CLT, MPHC Website: www.withcindyhowell.com Lipedema advocate: 860-550-1161 Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/ Free surgery course: https://l.bttr.to/6cATB https://www.instagram.com/stronger_than_lipedema_podcast/ Kristy's Contact information: IG https://www.instagram.com/dellalunawellness/ FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr Website Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.com Lipedema Advocate 856-297-7437 This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHP Carla treats Lipedema, hormones and weight optimization Website:CarlaWhortonagnp.com https://www.instagram.com/carlawhortonnp/ https://www.facebook.com/carla.whorton.np
Building a Regional Lipedema Surgery Center: Dr. Volshteyn & Dr. Kaminsky on Techniques, Safety, and Comprehensive CareHosts Cindy and Kristy introduce board-certified plastic surgeons Dr. Volshteyn and Dr. Kaminsky about joining a growing hospital-based lipedema practice in central New Jersey. Dr. Volshteyn describes accidentally entering lipedema care after a persistent patient, learning high-volume liposuction, and evolving into a regional center as demand grew (now about 50% of the practice). Dr. Kaminsky shares becoming convinced after a Boston symposium and focuses on comprehensive, lymphatic-preserving, patient-specific care. They outline a consultation and insurance-authorization process, extensive pre-op screening (e.g., thyroid, iron, clotting, PCOS, mast cell activation), overnight hospital stays, and week-long local follow-up. Dr. Volshteyn explains liposuction methods (tumescent, power-assisted, water-assisted, VASER, and skin-tightening add-ons), emphasizes technique and safety, and discusses treating higher-BMI patients by improving function and pain to enable activity and weight loss.00:00 Welcome to the Podcast01:41 Meet DrVolshteyn02:24 Accidental Lipedema Discovery05:50 Building a Lipedema Center08:33 Meet Dr Kaminsky10:42 Why Care Is Fragmented14:05 Consultation and Insurance Steps21:17 Safety and Personalized Planning24:29 Liposuction Techniques Explained36:32 Training and Surgical Cautions38:59 BMI and High Risk Patients45:30 Closing and Part Two TeaseNot Sure What Your Next Step Should Be? You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help. In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later. Ready to put the pieces together? Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdl Follow us on Social media!!! Cindy contact information FB: https://www.facebook.com/withcindyhowell Private FB Group: https://www.facebook.com/groups/7021999704562921 IG: https://www.instagram.com/lipedema_withcindyhowell/ Cindy Howell RN, CLT, MPHC Website: www.withcindyhowell.com Lipedema advocate: 860-550-1161 Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/ Free surgery course: https://l.bttr.to/6cATB https://www.instagram.com/stronger_than_lipedema_podcast/ Kristy's Contact information: IG https://www.instagram.com/dellalunawellness/ FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr Website Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.com Lipedema Advocate 856-297-7437 This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHP Carla treats Lipedema, hormones and weight optimization Website:CarlaWhortonagnp.com https://www.instagram.com/carlawhortonnp/ https://www.facebook.com/carla.whorton.np