Guiding a neurodivergent kid through grief (by breaking all the rules)
Everyone Gets a Juice Box: For Parents of Neurodivergent KidsShow Notes
Alynda Wheat Savage and her husband Dave were never big rule followers. They brought that punk rock spirit to parenting their son, Jack, who is neurodivergent. So when Dave was diagnosed with glioblastoma, they threw out the rulebook to help Jack process and grieve in a way that worked for him. Alynda shares how they protected Jack through diagnosis, decline, and loss. Her story is sometimes funny, always unflinching, and full of heart.
More from Everyone Gets a Juice Box: For Parents of Neurodivergent Kids
We’re dropping into your feed a week early to announce a new investigative podcast from Understood.org. It’s called Zero Reject: The Uncertain Future of Special Education. This is episode 1. If you like it, follow Zero Reject wherever you get your podcasts.
In 1975, a federal law promised every child with a disability a free appropriate public education. Fifty years later, that promise is on shaky ground. Jessica talks with education reporter Anya Kamenetz, host of Understood’s podcast series Zero Reject, about cuts at the Office for Civil Rights, the roughly 25,000 complaints left in limbo, and why meetings for Individualized Education Programs, or IEPs, feel like a battle. Plus: the parents who built special education, and what gives Anya hope.
Tehrima Rai spent years being told her son was “just picky.” Relatives blamed her parenting, and she struggled to get help. But Tehrima, a pediatrician herself, trusted her instincts and kept searching until she found the real answer: ARFID, an extreme fear of food that’s more common in neurodivergent kids. Through feeding therapy, logbooks, and her own experimentation, she helped her son eat — and finally healed deep wounds of her own. For more on this topic Listen: Why I stopped hiding my kid’s neurodivergence Watch: Guiding a neurodivergent kid through grief (by breaking all the rules)
Psychotherapist and ADHD expert Merriam Saunders spent years locked in daily battles with her strong-willed daughter. No form of discipline worked. Then one ordinary blowup led to an unexpected realization: The problem wasn’t defiance, it was an ADHD skills gap. And, crucially, she realized it wasn’t her daughter’s job to fix it.
Jessica is off this week, but we didn’t want to leave you without something great to listen to. So, in honor of back-to-school, we’re sharing an episode about school refusal from another Understood podcast, called In It.