Show Notes
Join SOFT UK and the team as they discuss their upcoming fundraiser. They will be taking part in the Royal Parks Half Marathon and their training begins today!
Check out our fundraising page here: https://www.justgiving.com/campaign/royalparkssoftuk
More from Trisomy Family Stories
In this episode, we're delighted to be joined by Natalie Morris, CEO and Founder of The Feeding Trust. Natalie is a specialist Speech and Language Therapist with extensive experience supporting children and families affected by pediatric feeding disorders. https://www.feedingtrust.org/
Claire Rowe bravely speaks of her Trisomy journey with her daughter Loreley. Having already faced a still birth she was devastated to find out her next pregnancy wasn’t to be as she hoped. For more information, visit www.soft.org.uk For more information about screening, visit: https://www.soft.org.uk/in-pregnancy-copy
In this episode, we hear from Ann-Marie who received a diagnosis of Full Trisomy 18 at 20 weeks pregnant; news that would change the course of her pregnancy and her expectations overnight.
In this episode, we’re joined by Enny, who shares the remarkable journey of her daughter Isabelle, now two years old and living with Full Trisomy 13.
In this episode, we are honoured to be joined by Niamh Lynch, who shares the story of her beloved son, Cillian. At just 12 weeks pregnant, Niamh was told that Cillian had Trisomy 13, a diagnosis that would change everything. In this deeply moving conversation, Niamh speaks with honesty and grace about the months that followed: the shock, the fear, the love, and the impossible decisions no parent ever expects to face. Niamh reflects on carrying Cillian, bonding with him, and learning how to hold space for both hope and heartbreak at the same time. She also shares how reaching out to SOFT UK became a source of comfort, connecting her with other families who truly understood what she was facing, and reminding her that she was not alone on this path. Through speaking with parents who had walked similar journeys, Niamh found reassurance, strength and a sense of belonging during an otherwise isolating time. Her story is not only about loss, but about love, connection and the quiet power of being heard. This episode is a tribute to Cillian’s life and to the enduring strength of a mother’s love. It offers comfort and solidarity to families walking similar paths, and invites listeners to sit with a story that deserves time, care and compassion.'