Show Notes
The conversation covers Nicole's personal identity, professional journey, involvement in the MND community, participation in charity events, running marathons for MND, fundraising, coping with community involvement, and future marathon plans. It also highlights the impact of MND on regional areas and offers advice for children of MND patients.
More from Let's Talk MND
In this episode, Peta Hardy, an Occupational Therapist who specialises in MND, and shares insights on how occupational therapy supports individuals with MND. She discusses assistive technology, home safety, and the importance of a multidisciplinary team to improve quality of life.
In this mind blowing episode, Dr. Amanda Wright and Dr. Lyndal Henden discuss their recent research findings that MND has a 7 times higher prevalence in areas of in Western NSW, compared with the rest of the world! We explore incidence rates, genetics and environmental factors, and the challenges of rural healthcare. They share insights into ongoing efforts to improve data collection, diagnosis, and care for rural patients.
What happens when you live with MND far longer than expected?
Adam Dowling is living with SOD1 MND, a rare genetic form of motor neurone disease.
In this episode, I’m joined by Sarah Shuttlewood, who shares her family’s journey following her father Peter’s diagnosis with MND.