Show Notes
Janet Hough was diagnosed with MND in June 2023.
Janet and her husband Peter are a true team and focus on what brings them joy on their MND journey.
They have started a monthly MND Mornington Peninsula group They are organising a MND Victoria - Event - Walk for a Cause - Mornington Peninsula - on October 5th at Mornington Park. You can find out more about the walk here https://share.google/o0XrbBYHZ6Lv7PU9N Janet is involved in LERAP and the LEN and is a co-investigator on various care studies.
She has attended the international MND conference, given presentations at different seminars. Janet is an advocate for how important it is for researchers to work closely with PLEx.
Janet and Peter are not ignoring the fact that MND is a life-limiting disease. They know life has its challenges in unexpected ways for everyone, and they have to face these and continue to live their best lives.
More from Let's Talk MND
In this episode, Peta Hardy, an Occupational Therapist who specialises in MND, and shares insights on how occupational therapy supports individuals with MND. She discusses assistive technology, home safety, and the importance of a multidisciplinary team to improve quality of life.
In this mind blowing episode, Dr. Amanda Wright and Dr. Lyndal Henden discuss their recent research findings that MND has a 7 times higher prevalence in areas of in Western NSW, compared with the rest of the world! We explore incidence rates, genetics and environmental factors, and the challenges of rural healthcare. They share insights into ongoing efforts to improve data collection, diagnosis, and care for rural patients.
What happens when you live with MND far longer than expected?
Adam Dowling is living with SOD1 MND, a rare genetic form of motor neurone disease.
In this episode, I’m joined by Sarah Shuttlewood, who shares her family’s journey following her father Peter’s diagnosis with MND.