Show Notes
Welcome to the 2025 "Let's Talk MND" Podcast. Mark Puls was diagnosed with MND in 2022. Like many people living with MND, he is doing for others. He is raising funds for Prof Domonic Rowe at Macquarie University. Last year, they raised $13k. They are planning another event this October. This year, members of his family and some friends will climb Mt Fuji in Japan to raise awareness of MND. In this podcast we talk to Mark and his wife Jill, some of the family and Mark's best mate David.
More from Let's Talk MND
In this episode, Peta Hardy, an Occupational Therapist who specialises in MND, and shares insights on how occupational therapy supports individuals with MND. She discusses assistive technology, home safety, and the importance of a multidisciplinary team to improve quality of life.
In this mind blowing episode, Dr. Amanda Wright and Dr. Lyndal Henden discuss their recent research findings that MND has a 7 times higher prevalence in areas of in Western NSW, compared with the rest of the world! We explore incidence rates, genetics and environmental factors, and the challenges of rural healthcare. They share insights into ongoing efforts to improve data collection, diagnosis, and care for rural patients.
What happens when you live with MND far longer than expected?
Adam Dowling is living with SOD1 MND, a rare genetic form of motor neurone disease.
In this episode, I’m joined by Sarah Shuttlewood, who shares her family’s journey following her father Peter’s diagnosis with MND.