Show Notes
In this episode, Shell and Tiana discuss recent health diagnoses, including hEDS and POTS, their impact on daily life, and strategies for managing chronic conditions with mindfulness and self-care. Chapters 00:00 Introduction and Episode Overview 00:27 Shell's New Diagnoses: hEDS and POTS 01:19 Understanding hEDS and Its Impact on Mobility 02:12 Diagnostic Process: Blood Tests, DEXA Scan, and POTS Test 03:10 Experiencing the POTS Test and Its Effects 04:31 Symptoms and Physiological Responses to POTS 05:22 Differentiating Medical and Clinical Diagnoses 06:33 Hypermobile Syndrome and Its Connection to Pain 07:54 Adapting Exercise for Hypermobile Joints 09:35 Rehabilitation: Strengthening and Mindful Movement 10:30 Gut Issues and Fecal Loading in hEDS 11:54 Managing Symptoms with Diet and Hydration 12:24 The Psychological Impact of Diagnoses 13:44 Changing Movement Habits and Mindfulness 14:40 Physical Activity and Listening to Body Signals 15:37 Balancing Productivity and Rest 16:54 The Role of Mindfulness in Health Management 18:16 Embracing Discomfort and Building Resilience 19:13 Psychological Effects of Chronic Conditions 20:35 Body and Mind Connection in Health 21:25 Adapting Lifestyle and Setting Boundaries 22:48 Learning to Rest and Prioritise Self-Care 24:06 Validation and Self-Compassion in Chronic Illness 25:02 Future Management and Ongoing Strategies 26:49 Closing Remarks and Next Steps https://potsfoundation.org.au/ https://www.ehlersdanlosaus.com/hypermobile-heds Powered by www.morpheuspublishing.com.au Hosts on Instagram Shelley https://www.instagram.com/shell_peers Tiana https://www.instagram.com/me_and_my_lipoedema The Lipoedema Podcast Instagram https://www.instagram.com/the_lipoedema_podcast/ Facebook https://www.facebook.com/thelipoedemapodcast YouTube https://www.youtube.com/@thelipoedemapodcast Spotify https://open.spotify.com/show/thelipoedemapodcast
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In this episode, Tiana and Shelley discuss mental health, the impact of antidepressants, and strategies for well-being, emphasising the importance of understanding mental health beyond labels and exploring personal experiences with medication.
Jill on recognising lipedema, getting diagnosed, and finding a routine that works Shelley speaks with Jill about her lipedema journey, from noticing unusual leg size at 12 or 13 to finally getting diagnosed in October 2024. They focus on the practical side of living with lipedema, including pain, swelling, food choices, movement, and the mindset shift that comes with understanding your body better. Jill also shares the tools and routines that help her most, including structured meals, carb cycling, pool work, and simple lymphatic support strategies. The episode is especially useful for anyone looking for realistic, non-extreme ways to manage symptoms day to day. Jill first noticed differences around puberty, especially bigger thighs and legs compared with her friends
Dr Jen Sanderson joins Shelley and Tiana to explain what compression pumps are, how they work, and who can benefit. The conversation focuses on using pumps for lipoedema, lymphedema, post-operative recovery, and sports recovery, with practical guidance on pressure settings, safety, and when to seek professional support. In this episode, Jen also shares why hydration, breathing, and the right sleeve coverage matter just as much as the pump itself. This discussion is especially useful for anyone deciding whether a pump is worth it, how often to use it, and how to make sure it fits their symptoms and treatment plan. 00:00 - Introduction to the episode and guest 01:18 - What a compression pump is 02:06 - Why people use compression pumps 04:08 - Graduated compression and how pump cycles work 05:37 - Why therapist guidance matters 08:31 - Medical pumps versus sports recovery devices 10:08 - How lipedema and sports recovery differ in pump use 12:13 - Body areas that can be treated 12:59 - Why half the body is usually enough at once 15:26 - Why fluid can shift to the upper body 16:57 - Deep breathing to help clear the thoracic duct 19:04 - Daily use versus a few times per week 23:31 - How to tell if the settings need adjusting 25:14 - Why pressure must be individualised 28:28 - Compression pumps before and after surgery 32:44 - Pregnancy precautions and pressure changes 34:46 - Conditions and situations where pumps may not be safe 37:08 - Long-term use and reducing recurrent cellulitis 39:39 - Where to try a pump 40:47 - How the rent-to-buy scheme works 43:38 - How to contact Medirent for questions 45:17 - Closing thoughts on individualised care Learn more about Medi-Rent via their website https://medirent.com.au/ Hosts on Instagram Shelley https://www.instagram.com/chai_latte_2go Tiana https://www.instagram.com/me_and_my_lipoedema The Lipoedema Podcast Instagram https://www.instagram.com/the_lipoedema_podcast/ Facebook https://www.facebook.com/thelipoedemapodcast YouTube https://www.youtube.com/@thelipoedemapodcast Spotify https://open.spotify.com/show/thelipoedemapodcast
In this episode, Charlotte Wolfenden shares her personal journey with lipoedema, her insights on navigating the healthcare system, and the importance of self-advocacy and tailored treatment options for women with lipedema. Chapters 00:00 — Introduction to Charlotte Wolfenden and her journey with lipedema
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