Show Notes
Highlights, Insights and the Voices Shaping Our Future The 2026 ITP Australia & New Zealand Patient Conference brought together clinicians, researchers, nurses, and patients for a powerful day of learning, connection, and community. In this special highlights episode of Beyond the Count, host Danielle Boyle walks you through the most impactful moments from the event — including breakthroughs in platelet function research, new insights into treatment side effects and risk, adolescent...
More from Beyond the Count
Fatigue is one of the most common symptoms experienced by people living with ITP. Yet for many patients, it's also one of the most difficult to explain. It's more than feeling tired after a busy day. It's waking up exhausted after a full night's sleep. It's struggling to concentrate, forgetting simple things, cancelling plans, and constantly weighing how much energy you have left for the day ahead. In the first episode of our ITP Fatigue Series, Danielle Boyle is joined by members of the ITP ...
ITP: More Than a Diagnosis The Relationships, Support and Community That Carry Us Through Being diagnosed with ITP can feel incredibly isolating. Suddenly you're navigating specialist appointments, blood tests, treatment decisions, and a condition most people have never heard of. But for many patients, one of the most important things they discover is that they don't have to do it alone. In this episode of Beyond the Count, Danielle Boyle is joined by ITP advocate and long-time community volu...
So, You've Been Diagnosed with ITP. Now What? Being diagnosed with ITP can feel like your world has been turned upside down. One minute, life feels completely normal. The next, you're learning about platelet counts, treatments, blood tests, specialist appointments, and a condition you've probably never heard of before. In this special episode of Beyond the Count, Danielle Boyle speaks directly to people recently diagnosed with Immune Thrombocytopenia and explores the questions, fears, and cha...
Understanding risk is important. But knowing how to ask questions, communicate what matters to you, and make confident decisions is where it all comes together. In the final episode of our Decoding Risk series, Danielle Boyle is joined by haematologist Dr Danny Hsu to explore what it really means to become a partner in your own care. Together, they discuss: the different ways patients engage with informationwhy there is no "right" way to be a patienthow to communicate your preferences and goa...
What happens when patient advocates from around the world come together with one shared goal: improving the lives of people living with ITP? In this special episode of Beyond the Count, Danielle Boyle takes listeners behind the scenes of the 2026 International ITP Alliance Symposium, held in Salt Lake City, Utah. As Australia's representative within the Alliance since 2019, Danielle shares how patient organisations from across the globe work together to improve education, treatment acce...