Show Notes
In this conversation, Rob and Sue Taylor share their experiences with motor neurone disease (MND) and the challenges they have faced together. Rob discusses his journey to diagnosis, the impact of MND on his life, and his involvement in the MND community.
Sue opens up about her own health struggles with cancer and the importance of support systems. Together, they emphasize the significance of finding joy amidst adversity, the value of humor, and the need for caregivers to seek help. Their story is one of resilience, love, and a commitment to raising awareness for MND.
More from Let's Talk MND
In this episode, Peta Hardy, an Occupational Therapist who specialises in MND, and shares insights on how occupational therapy supports individuals with MND. She discusses assistive technology, home safety, and the importance of a multidisciplinary team to improve quality of life.
In this mind blowing episode, Dr. Amanda Wright and Dr. Lyndal Henden discuss their recent research findings that MND has a 7 times higher prevalence in areas of in Western NSW, compared with the rest of the world! We explore incidence rates, genetics and environmental factors, and the challenges of rural healthcare. They share insights into ongoing efforts to improve data collection, diagnosis, and care for rural patients.
What happens when you live with MND far longer than expected?
Adam Dowling is living with SOD1 MND, a rare genetic form of motor neurone disease.
In this episode, I’m joined by Sarah Shuttlewood, who shares her family’s journey following her father Peter’s diagnosis with MND.