Show Notes
In this episode, Jean reflects on caring for her husband Greg, who died from MND in 2025. Jean and Jane discuss the physical and cognitive challenges of the disease, the need for clearer communication about cognitive changes, and the vital role of community support for people living with MND and their carers — including how to navigate life and identity after loss.
More from Let's Talk MND
In this episode, Peta Hardy, an Occupational Therapist who specialises in MND, and shares insights on how occupational therapy supports individuals with MND. She discusses assistive technology, home safety, and the importance of a multidisciplinary team to improve quality of life.
In this mind blowing episode, Dr. Amanda Wright and Dr. Lyndal Henden discuss their recent research findings that MND has a 7 times higher prevalence in areas of in Western NSW, compared with the rest of the world! We explore incidence rates, genetics and environmental factors, and the challenges of rural healthcare. They share insights into ongoing efforts to improve data collection, diagnosis, and care for rural patients.
What happens when you live with MND far longer than expected?
Adam Dowling is living with SOD1 MND, a rare genetic form of motor neurone disease.
In this episode, I’m joined by Sarah Shuttlewood, who shares her family’s journey following her father Peter’s diagnosis with MND.