Show Notes
What happens to joy when dementia enters the picture? When routines change, roles shift, and caregiving becomes heavier than anyone expected, is joy still possible, or does it quietly disappear?
In this episode of The Dementia Collective, Andrew Karesa sits down with Carrie Aalberts, gerontologist, dementia educator, and founder of Dementia Darling, to explore why joy still matters in dementia care and how it can exist alongside grief, exhaustion, and uncertainty.
Carrie shares her personal journey into dementia care, shaped by her grandmother’s diagnosis and years working inside senior living, adult day programs, and community-based care. She reflects on what surprised her early on, including how often families were left without guidance, and how those experiences reshaped her understanding of dignity, empathy, and what meaningful care actually looks like.
Much of the conversation centers on joy, not as positivity or denial, but as an intentional and evolving practice. Carrie explains how joy changes throughout the dementia journey, why it looks different than it once did, and how caregivers can find moments of connection even in the most difficult seasons. She emphasizes presence, slowing down, and letting go of unrealistic expectations placed on both caregivers and people living with dementia.
Andrew and Carrie also explore the role of children in dementia care, sharing why intergenerational spaces can foster empathy, normalize aging, and create powerful moments of connection. They discuss how community-based models challenge the isolation many families experience, and why caregiving should never be a solitary endeavor.
The conversation turns to systemic barriers in dementia care, including cost, staffing shortages, and the emotional toll placed on family caregivers who are often forced to navigate complex systems with little support. Carrie speaks candidly about burnout, grief, and the need for better structures that honor both caregivers and care workers.
In this episode: • Why joy still matters in dementia care • How joy changes throughout the caregiving journey • The emotional reality caregivers rarely talk about • Why intergenerational care benefits both children and elders • Systemic barriers families face when seeking support • How technology can enhance connection and quality of life • What dignity-centered dementia care really looks like
Learn more at: https://www.bluebellvillage.ca https://www.dementiadarling.com
Disclaimer: The information shared in this podcast is for general informational purposes only and is not intended as medical advice. It should not be used to diagnose, treat, or prevent any medical condition. Always consult your physician or another qualified healthcare provider regarding any questions you may have about a medical condition or treatment. The views and opinions expressed by guests are their own and do not necessarily reflect those of Andrew Karesa, blueBell Village Ltd., or any of its employees, contractors, or team members.
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